I’m back! I didn’t post last weekend because I was in London visiting friends. We did karaoke, watched films and chilled together, plus I bought too many books. And now I can ask you all which of the two Joss Whedon films currently out do you prefer? I vote Cabin in the Woods but they are both excellent, of course.
This week it was World Lupus Day, which I didn’t do anything special for, unusually. But I will take this opportunity to encourage you to learn more about lupus, a good start being Lupus UK or the Lupus Foundation of America.
This week also saw the rain finally stop and the sun come out, so I am going to stop waffling and enjoy my summery Sunday. Is it summery where you are today?
Yes, it’s that time of year again. I had forgotten all about it and then Stephen Fry kindly tweeted a reminder. In timely fashion I am struggling to write very much about World Lupus Day because my lupus is flaring a little and stealing all my words. It does that.
You see, when I talk about fatigue I don’t just mean I feel tired; there’s a whole host of fun that comes with the tiredness. I suppose it’s not unlike a bad hangover combined with lack of sleep – there’s the headache, dizziness, nausea, dry mouth, double vision and, of course, the brain fog.
Brain fog? I remember the first time the rheumatologist said the words to me and I felt such huge relief. That bizarre cotton-woolly feeling of not being able to think straight, of losing words, of not being able to answer simple questions – it’s real! And I’m not the only one!
And this is why events like World Lupus Day are so important. Diagnosis is vital even in “mild cases” like mine and, of course it is life-saving in many other cases. But it’s also hugely helpful for other people to know about lupus and what it means for me and others. And a little more support for research into new treatments would also be a good thing.
To brighten up this post, here is a random old picture I took of a butterfly, because they’re the symbol of Lupus UK.